adon Data Collaborative

Background
The Radon Data Collaborative is an informal working group anchored by the Indoor Environments Association that seeks to make progress after a fall 2024 discussion in DC about improving the flow, availability, and quality of radon test data. Meeting participants in 2024 included radon device companies and labs, American Lung Association, Conference of Radiation Control Program Directors’ E-25 committee, Indoor Environments Association, US Environmental Protection Agency (EPA) Indoor Environments Division, US Centers for Disease Control and Prevention (CDC) National Center for Environmental Health (NCEH), National Cancer Institute (NCI)’s Tobacco Control Research and Surveillance Informatics Branches, U.S. Department of Energy (DOE) Oak Ridge National Laboratory, and U.S. Department of Veterans Affairs.
Stemming from the discussion in 2024, three actionable goals were established during a January 2025 teleconference meeting attended by prior meeting participants:
1.Help CDC EPHT update the data dictionary fields in 2025
2.Establish a uniform data standard, where all entities with radon data requirements follow the same mandatory reporting requirements for example through voluntary consensus standards guidance: this medium-term goal will require agreement on the best approach for all entities involved.
3.As a long-term goal, create a unified cloud-based data repository to bring together various strands of data for the same tests and better manage deduplication and geocoding.
Two additional important areas of focus that merit further Radon Data Collaborative discussion and additional goals are evidence generation targeting USPSTF guidelines and addressing potential biases in the data set. 
November 2025: Updating the CDC EPHT Data Dictionary
Several participants reviewed prior years’ notes for improving the existing radon lab data dictionary and drafted changes to address well-known deficiencies such as insufficient descriptions of multiple tests of the same unit, missing items required by the ANSI-AARST standards, and inadequate descriptors of buildings. As of November 2025, through a survey, IEA is seeking feedback on the Draft Revised Data Dictionary. The draft revision and survey do not cover address fields and other geography-related factors which will remain unchanged at this time. IEA will compile the results for submission to CDC. The deadline for responding to the survey is Monday December 1.